Cerebra July Newsletter

I was sent this by email and thought I’d share, Cerebra are also on twitter @CerebraUK….Jx

Hello. Welcome to the July e-newsletter for Cerebra members with the latest news, events and information from the charity.

Cerebra Innovation Centre – Survey

Please can you spare a few minutes of your time to share your opinions on our Cerebra Innovation Centre.

As part of an ongoing process of evaluating their approach to designing and delivering products for children with neurological conditions, Cerebra Innovation Centre and Swansea Metropolitan University are undertaking a 3 year research programme. Your views will help Cerebra Innovation Centre to deliver better solutions for its customers – It should only take between 2 and 10 minutes to complete. Please follow this link to take part: surveymonkey.com/s/cerebra_survey

Thank you, we’re looking forward to hearing what you’ve got to say!

Disabled Children Parents’ Guide: Money Matters

Our latest Disabled Children Parents’ Guide: Money Matters is available now. It contains guidance for parents on what financial help may be available for them and what arrangements they may need to put in place to manage their children’s finances from birth and as they get older.

cerebra.org.uk/English/getinformation/finance/Pages/DisabledChildrenParentsGuideMoneyMatters.aspx

Cerebra Ambassadors

We have a team of Cerebra ambassadors who are committed to actively promoting awareness of Cerebra and our work through their work and personal lives so that the charity can benefit from their enthusiasm and skills. Ambassadors can be individuals who are recognised talents in public life. They may also be people who the charity has supported and who already have close links with our work.

We are currently looking for new ambassadors to join our small team. If you can suggest anyone who you think would be a strong advocate for Cerebra, please do get in touch with Elaine Collins (elainec@cerebra.org.uk / 01267 242583). Please note that this is a voluntary role.

Stress in families of children with neurological conditions – questionnaire.

Elmira Strange of Swansea Metropolitan University is continuing with her PhD on ‘Stress in families of children with neurological conditions’ for Cerebra. The study is expanding and she is inviting you again to fill a new and revised questionnaire about your experience of caring for your child. The views of the parents / carers, and particularly the grandparents and siblings over 16 years of age are wanted. If you would like to help her with the study contact Elmira directly at Elmira.strange@smu.ac.uk

BMJ article

The British Medical Journal has recently published an article ‘Effort, exaggeration and malingering after concussion’ jnnp.bmj.com/content/83/8/836.full from the Journal of Neurology Neurosurgery and Psychiatry. As well as allowing free access to the full article they have supplied a lay summary to help patients and their families. The lay summary can be accessed via the following link: jnnp.bmj.com/content/83/8/836/suppl/DC1

‘Nothing about us without us’: Enabling non-discriminative autism and Asperger’s syndrome research participation

This is a study by Ann Browning, a researcher at Loughborough University. It’s an opportunity for people with an autistic spectrum condition to take part in a consultation which will contribute towards the development of a research project investigating the criminal justice system experiences of young suspects, defendants, and offenders with Asperger’s syndrome and other autistic spectrum conditions.

If you would like the opportunity to take part in this consultation, or know of someone else who might like to participate, please contact me- Ann Browning by email at A.L.Browning@lboro.ac.uk and she will send you a consultation pack. To find out more about Ann and the research project visit lboro.ac.uk/departments/ss/staff/researchstudents/browning.html or -staff.lboro.ac.uk/~ssalb2/index.html

For members in the west Midlands

Cerebra Summer Fun day out to Hatton Country World on Thursday 16th August. Places are limited so booking is essential. For more information or to book your place please contact inekew@cerebra.org.uk.

For members in Wales

The Welsh Government is introducing a series of Early Support parents’ workshops for parents/carers and the wider family of a disabled child. The sessions will be held in Newport during the Autumn. If you would like to join in, or to find out more please e-mail Marcia.jones@childreninwales.org.uk.

We aim to send the members’ newsletters on a monthly basis but If we don’t have any news for you in a particular month then we won’t send out an e-mail.