Me and my girl and boy, raising awareness and acceptance of autism

Posts tagged ‘Autism’

Bronze – Tues 9th Feb 2016

Today didn’t start fantastically well with D overwrought and refusing to say goodbye or wave (something she always does) at the top of the stairs as she headed to class.

She was over anxious because she was going to a Boccia tournament with school.  It was being held offsite and competing against five other schools – quite a lot for her to get worried about.

I didn’t know what Boccia was until D went along for her first game a couple of years ago, it’s this:

“Boccia is a disability sport that tests muscle control and accuracy. Players propel balls to land close to a target ball. Two sides compete as individuals, pairs or as a team of three over a set number of ends. Each side has six balls (red or blue) each end to try and score points. Points are accumulated over the course of a match to find a winner.

Sounds simple? It is to get started, but the tactics of the sport offer both tension and excitement as the game plays put.

A ball can be rolled, thrown or kicked. If a player is unable to throw or kick the ball, they can use a ramp. If players are unable to release the ball with their hands, they can use assistive devices – head/hand pointer.”

Sounds good, doesn’t it?  In the tournament I was able to go to a while back (generally parents aren’t invited but this was in a leisure centre near school), it did seem a nicely gentle game, apart from the competitive element and the fact that D would be sitting with strangers as the pairs waited to have their go.

And have a go she did.  In fact our girl practically sailed down the stairs this afternoon, beaming away and wearing this:

A bronze medal! It’s a really lovely heavy medal too, with fab detail on the back.

She does struggle with the competitive element and so it was fab to see that the team had been rewarded for what must have been a challenge for them all.

A great contrast to a not fantastic start today and, additionally, T seems to be turning a corner with this vicious bug that’s had him in its grasp for a few days. Hurrah! 

A silver lining behind that stress cloud

Yesterday was not a good day – click here for my diary post – it didn’t start well and it certainly didn’t continue well.

One of the downsides about D having a dreadful start was that I wasn’t really focused on what I was meant to be doing. I wrote our Bookworm Wednesday and a review, almost halfheartedly, thinking about my girl and whether her day was improving.

I was meant to have an eye test yesterday, I say meant because I got the time wrong. I thought it was 10.20am when it had been 10.00am. Talk about embarrassing! The opticians were very nice about it and said “don’t worry, it happens”. I never, ever get times or dates wrong, I guess I was too distracted.

Part of me was secretly relieved, I think they’ll be telling me I’ll need glasses for the first time. I had Bells Palsy a few years ago
to read my post on the experience, click here – and the eye on that side of my face is definitely weaker. You wouldn’t know to look at it, but it is.

So, I know but I don’t, if you know what I mean.

Anyway, another appointment has been made for tomorrow and I left feeling a bit of a numpty.

Someone was outside the shops further down, handing out leaflets and I took one. It was only a voucher for a free Specsavers eye test!


The timing couldn’t have been better and obviously, if I’d gone at the right time (but didn’t, doh!) I’d have paid full price.

The chap handing them out must thought it was his lucky day, not only did I thank him but asked for another. Hubbie is due an eye test too.

So, thinking positive, every cloud DOES have a silver lining! Wish me luck for tomorrow though Jx


Would like to start the day again please Weds 13.03.2013

I would, I really really would. But of course, that’s not possible. I hate seeing D so upset, so anxious, so worked up that she initially can’t say what’s wrong.

Days like this that I wish she didn’t have autism. What’s that saying? “My child has autism, but autism doesn’t have them” or something like that. I’d disagree today. Thanks to an unfortunate incident at school, autism took control today and didn’t let up.

Days like this, I don’t want to blog. I don’t want to sound like I’m moaning. Comments tell me if I am – they do – they mostly go to spam, but they tell me to stop whining. I wonder if they live with autism, or know someone who does, or whether they just feel like having a go at someone. *delete, delete, delete*.

Days like this, I do blog because I know it helps parents/carers/individuals on the spectrum to know that someone, somewhere is not having the best of days too, that they’re not alone. That’s the important thing, that’s why I blog.

Our day, where to start?

D had anxieties before we left the house this morning, she didn’t want to go to school, she didn’t want to “exist”. She accepted a bear hug but didn’t acknowledge my telling her that we’d all miss her if she didn’t exist. I don’t know where this comes from, I presume it’s pre-teen angst, coupled with annoyance at her brother, mixed up with autism.

We eventually got to D’s school, only to find the doors locked, a student was having a meltdown in reception. This is to be expected, it’s a special needs school but, the school don’t put any notices outside or have a staff member standing by, directing visitors and students elsewhere. The other entrance was unmanned and locked too. D, by now, unable to cope with the change was bolting. Back to door number one, where suddenly a head appearing shouting to go to the other door.

Eventually we got in, D by now very anxious, not wanting to be there at all.
She refused to go into the classroom too and an unempathetic TA thought she was just being difficult, until I explained about the doors, about the bolting and anxiety. The phrase “don’t judge a book by its cover” sprung to mind. She was persuaded in and I left, feeling sad for my girl, really hoping she’d have a good day.

(This is where I feel let down by the school, it just needs a little bit of thought. There are windows all around reception, a notice could be easily made and kept under a window, ready to be put up. It doesn’t create a very good first impression, it says chaos. I did notice one of the governors in the car park, I doubt he got in terribly easily either.)

She didn’t have a good day. I went into the classroom – normally D rushes at me enthusiastically and body-slams me – and there was my D, wailing whilst sitting on the floor. She’d been upset by another child whilst in the playground, amongst other things.

Her very-sensitive/anxious moods have continued at home. I always mention to T if D has had a bad day and ask him to make allowances for her, he hasn’t today. In no particular order, there have been squabbles, shouting, tears, threats to leave home and much-needed bear hugs.

This has literally lasted all this afternoon, through meal time, evening routine and settling (or lack of it) time. Thank goodness for melatonin, otherwise she’d still be awake and anxious now.

So, I know this has not been a positive blog and I do like to end positively. I’ll find my “Charlie Brown” picture and end by saying despite today, I wouldn’t be without them; my individual, wonderful children. I am blessed, I am grateful that I was chosen to be their Mumma but I would like a better day tomorrow.



That last picture is for anyone who also hasn’t had the best of days.

Thanks for reading, comments/RTs/shares as ever welcomed Jx 😘

The best laid plans….

We were all set for our trip to Reading. Snacks & drinks under the buggy. Bus times obtained.

We had worked out precisely where we were going and in what order: lunch in MacDonalds & a trip to House of Fraser – D wanted a rubiks cube bud duck, I wanted to look at the handbag section, T would be happy as long as we looked in the Game store.

Just as we were about to leave, D (who has the bladder of a camel) wet herself. Consequent meltdown.

Trip abandoned. Relevant areas scrubbed. Washing machine on.

We have found the duck she likes on Amazon & she is now happy at home.

I’ve just cleaned out the guinea pigs & been wee-d on by one of them too!