Me and my girl and boy, raising awareness and acceptance of autism

Archive for the ‘Music Monday’ Category

Sometimes change is not good … Mon 04.02.2013

What was it my Grandma would say? “A change is as good as a rest” Unfortunately it’s not if you are parenting autistic children.

Our children don’t cope very well with change, at all. The need to have a well-structured routine and advance notification of potential change is vital.

I read about parents who literally just pack up a car and set off on holiday/road trip just for the adventure/fun and feel slightly envious that we’ll never be doing that. For one, I don’t drive and everything we do has to
be risk-assessed, I hope it will get easier as T and D get older.

So, what is the change that has caused my D so much angst and distress today? Her teacher is off and has been since last Wednesday. No-one seems to know when she is back, she’s injured her arm. It’s an unfortunate situation that happens, luckily the other TAs are all in, but D is missing her teacher.

It’s manifested itself in terms of a very unhappy girl I collected at hometime, she couldn’t tell me what was wrong until we were well outside the school gates, she’d just wail – sometimes loudly, sometimes silently.

We’ve had an understandably sensitive D at home, when we’ve chatted to her about her day it sounds like the other children are missing their teacher too.

We’ve already had anxieties about school tomorrow – not to mention it’s a PE day – because her teacher had agreed a strategy which seems to have been forgotten (a note in the diary time).

Hopefully tomorrow will go better than currently anticipated.

I didn’t do a “Music Monday” earlier as I wanted my blog for World Cancer Awareness Day to be the primary post today – click here to read it.

Here therefore is today’s Music Monday:
Billy Idol – Eyes Without A Face (click on the title to view the video)
I’ve chosen this today as I like the rocky element of the song which comes in at 2minutes 26seconds and, were I to put it in a normal music Monday post, I’d never be able to analyse the lyrics! The video is from 1984 and I hadn’t seen it before today, a very young Billy at his sneering best.

So, that’s rounded off our day, I hope everyone’s had a good one, comments/RTs/shares as ever welcomed, thanks for reading Jx 😘

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Music Monday “Life’s what you make it” by Talk Talk

Today’s “Music Monday” is by Talk Talk. I watched this video with D over the weekend and she loved all the insects and animals in it, make sure you watch right to the end, after the music has stopped, lovely wildlife shots.

Lyrics first:
“Baby
Life’s what you make it – can’t escape it.
Baby
Yesterday’s favourite – don’t you hate it?
Ev’rything’s alright – live’s what you make it –
Ev’rything’s alright.

Baby
Life’s what you make it – don’t backdate it.
Baby
Don’t try to shake it – beauty is naked.
Ev’rything’s alright – live’s what you make it –
Ev’rything’s alright – what you make it.

Baby
Life’s what you make it – celebrate it

Anticipate it – yesterday’s faded.
Nothing can change it – life’s what you make it.
Ev’rything’s alright – life’s what you make it.
Ev’rything’s alright – life’s what you make it.
Ev’rything’s alright – ev’rything’s alright.”

I didn’t realise, until I searched for the lyrics that the song was written by David Sylvian (of Japan-fame, I remember a friend of mine shaved her eyebrows off because one or more of the group had done that, those were the days..)

And they’re right “Life IS what you make it”. We only got one shot at it so…make it most of it. I sometimes think I’m getting a little message, I can be walking along, full of thoughts and suddenly a white feather will float down – no wind, no birds. And it does the trick, I instantly think of an amazing lady, no longer on this earth and I’m grateful that I’m around.

So, here’s the video link, enjoy the song and the insects!!

Thanks for reading Jx 😘

Music Monday “Universal Child” by Annie Lennox

Today’s “Music Monday” is an incredibly beautiful, moving song.

It’s so powerful that I don’t think it needs me to blather on about how appropriate it is, how any parent would identify with it.

To listen to it, please click here for a link..

The lyrics alone are stunning:

“How many mountains must you face before you learn to climb?
I’m gonna give you what it takes, my universal child.

I’m gonna try to find a way to keep you safe from harm.
I’m gonna build a special place, a shelter from the storm.
And I can see you, you’re ev’rywhere, your portrait fills the sky.
I’m gonna wrap my arms ’round you, my universal child.

And when I look into your eyes, so innocent and pure,
I see the shadows of the things that you’ve had to endure.
I see the tracks of ev’ry tear that ran right down your face.
I see the hurt, I see the pain, I see the human race.
And I can feel you, you’re ev’rywhere, shining like the sun.
I wish to God that kids like you could be like ev’ryone.

How many tumbles must it take before you learn to fly?
I’m going to help you spread your wings, my universal child.

I’m gonna help you to find a way to keep you safe from harm.
We’re gonna build a special place, a shelter from the storm.
I can feel you, you’re ev’rywhere, shining like the sun.
I wish to God that kids like you could be like ev’ryone.
And I wish to God that kids like you could be like ev’ryone.”

For more information on Annie Lennox and the wonderful things she does for charities, please click here.

With thanks to Trevor for introducing me to this song and thank you for reading Jx 😘

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Music Monday

Today’s “Music Monday” is Sometimes by Erasure.

I couldn’t find an official video-type-video so the link was a live performance from YouTube.

The lyrics are below, I’m not going to analyse them as I just like the song:

“It’s not the way you lead me
By the hand into the bedroom
It’s not the way you throw your clothes
Upon the bathroom floor
Been thinking about you
I just couldn’t wait to see
Fling my arms around you
As we fall in ecstasy

-Chorus:
Ooh sometimes
The truth is harder
Than the pain inside
Ooh sometimes
It’s the broken heart
That decides

It’s not the way you caress me
Toy with my affection
It’s not my sense of emptiness
You fill with your desire
Climb in bed beside me
We can lock the world outside
Touch me satisfy me
Warm your body next to mine

Chorus to fade”

But I will add that Hubbie thought the “it’s not the way you throw your clothes on the bedroom floor” applied to him.

I downloaded the Ministry of Sound Electronic 80’s recently and I’m enjoying revisiting songs that I hadn’t heard in years.

For more information on Erasure, click here for their official website.

Thanks for reading Jx 😘

Music Monday

I have a day with T today as he goes back to school tomorrow, today’s “Music Monday” is dedicated to him.

Our very intelligent, book worm; who can be incredibly stubborn and determined to do the best he can at everything he undertakes.

He and D might wind each other up and fight like Tom and Jerry sometimes but won’t be without either of them.

Here’s today’s song “Call Of The Wild” by Midge Ure.

This song was the only song that would calm T when he was a baby/toddler and I used to sing it to him every night. I remember being in the early stages of labour with D, still singing away!

As I was searching for the song on YouTube T was setting up his Skylander game singing along. Happy memories 😍

Thanks for reading Jx 😘

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Bye bye 2012, Bring It On 2013!

So…we’re in the last day of 2012, a time for reflection, a time for looking back and moving forwards (which coincidentally was the title of one of my first ever blog posts).

Of course, it (civilisation) was all meant to be over on Friday 21st December – times varied according to which radio station/TV programme you watched. I can imagine some people being extremely scared and worried and the only true beneficiaries of this prophesy were the inhabitants surrounding a “chosen” mountain from which UFOs would supposedly take off with a chosen few – there must have been journalists supping a fair few lagers on expenses – and direct descendants of the Mayan tribe itself. It spoke volumes about society today when one of the tribe broke off from his chanting to take a call on his mobile!

Personally and in a blogging capacity, I’ve learnt a lot this year. My recent post for Groovy Mums detailed my personal highs and lows of 2012. As a special needs parent/carer and blogger I am so so glad I connected with parents/carers/individuals on the spectrum, I have learnt so much from everyone and individual insights/tips/support are invaluable.

I’m going to include my “Music Monday” in this post too, as it’s very relevant. Life is a roller-coaster by Ronan Keating. I made Hubbie laugh by asking him to guess it and as a clue I said “it was from when we were courting” – can you tell I watched Downton Abbey recently?!?

Life is a roller-coaster (the title) describes parenting SN children to a tee. There is either (for the children) happiness (at the top) or anxieties and sadness (down the bottom), no real in-between. I also like the various spinning tree shots in the video, it reminds me of travelling to see my grandparents, there was always a road we drove down with trees interlocking each other overhead and I always knew we were nearly there. We’d always be travelling in early evening so the sun would be setting through the trees too.

Mushy moment over!

I’d like to mention some posts below that I wrote earlier this year – before I knew how to link!

Some that made me laugh, some that made me cry as I wrote them:

A is for … Autism

What’s in a number…

What Autism means to me

United we stand…divided we fall

Twitter and how it’s helped me – one year on

My favourite post;
The camera DOES lie

My most read post and an example of the autism community working together;
Dear 50 Cent: This is what Autism looks like

And an update to the 50 Cent post:
Dear 50cent – an update

Enough blowing my own trumpet! I want to wish everyone a very Happy New Year and good wishes for 2013, onwards and upwards.

Thank you so much for the RTs, comments and shares in 2012, please use the buttons below if you would like to.

Happy New Year from all the Bluecrisps! 😘

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(Thanks to @epilepsymummy for the pic)

Music Monday – A special performance

Today’s Music Monday is from D, I hope you enjoy it.

D has absolutely flourished in her SN school with it’s small classes and high staff-pupil ratio. She still has her anxieties and issues but her progress in the last two years have been wonderful to see.

I hope you enjoy the video, this is one of D’s favourite Christmas songs, it’s sung a lot!

Merry Christmas from us all 🎅🎄

Music Monday

Here’s today’s Music Monday, one of my favourite songs and it’s very motivational.

It’s Just For You by Midge Ure. There doesn’t seem to be an official video so this is a compilation video from YouTube.

I’ll often play it just before a meeting about T or D to get me in the right frame of mind, have a look at the lyrics and see if you agree.

“JUST FOR YOU by Midge Ure
Just for you, I could fly
Just for you, I could walk the oceans
I would cross all divides
To satisfy your whims and notions
For you, I could break the system
I would take every blow
Survive upon a poor man’s wisdom
And if you want I’d chase the world away
And when you cry I’d kiss the tears away
Just for you, I would cry
Just for you, I would fall down to my knees
And pray that I could raise a love that’s fit to please you
And if you’re lonely I will be with you
If you’re in doubt I’ll tell you what to do
I would take your hand and I’ll lead you through
I’d give my very soul to be with you
And when infatuation fades I’ll still be by your side
I will be there when you call
There’s not one thing I wouldn’t do
That I couldn’t do at all
That I wouldn’t do at all
Just for you, I would change
Just for you, I would break the system
I would take every blow
Survive upon a poor man’s wisdom”

So many of the lyrics could apply to parenting a child:
“…and when you cry I’d kiss the tears away….if you’re in doubt I’ll tell you what to do…I would break the system, I would take every blow….”

For more information about Midge Ure, he has such a fantastic voice and he’s a nice wee laddie, please click here.

Here’s my motivations, each wonderful in their individual ways. Love them both to bits (soppy Mumma).

Thanks for reading Jx 😘

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Music Monday

Today’s Music Monday is Killer by Seal (click on the link to hear.

It’s an incredibly powerful song, both in terms of what it’s saying and how it’s saying it.

Listen to it in conjunction with my It’s Good To Talk post of yesterday and keep talking to each other – the ups and the downs.

Thanks for reading Jx 😘

Here are the lyrics:
“Brother
Sister
It’s the loneliness thats the killer
So you want
To be free
To live your life
The way you want to be
Will you give
If we cry
Will we live
Or will we die
Jaded hearts
Heal with time
Shoot that love
So we can
Stop the bleeding
Solitary brother
Is there still a part of you that wants to live
Solitary sister
Is there still a part of you that wants to give
Solitary brother
Is there still a part of you that wants to live
Solitary sister
Is there still a part of you that wants to give
If we try
And live our lives
The way we wanna be
Yeah
Brother brother
Sister sister
Brother brother brother brother brother
There’s no other love There’s no other love There’s no other love
There is no other love no other love like ours
There’s no other love There’s no other love There’s no other love
There is no other love no other love like ours
There’s no other love There’s no other love There’s no other love
There’s no other love There’s no other love There’s no other love
There is no love
Solitary brother
Is there still a part of you that wants to live
Solitary sister
Is there still a part of you that wants to give
Solitary brother
Solitary Sister
Is there still a part of you that wants to give
Racism in among future kings can only lead to no good
Besides all our sons and daughters already know how that feels”

Music Monday

BritMums #festiveplaylist at the end.

Today’s Music Monday is “Stay Another Day” by East 17, to see the Christmas video of the song please click here.

This song is my favourite Christmas song, which might surprise people who think I’m a “stuck in the 80’s” girl.

It was number one in the charts for weeks during my eldest’s first Christmas and I’ve got lovely memories of singing along with it to him and him smiling away. I had a couple of years of not knowing if I was going to be a mum so that first Christmas was fantastic.

For more information on East 17, here’s a link to their website.

There’s so much Muzak played in the shops at this time of year, but I’m never tired of hearing this one.

Thanks for reading Jx 😘

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To link in with the BritMums #festiveplaylist linky, here’s my other four Festive favourites:
Band Aid (original) – Feed The World
Elton John – Step into Christmas
The Pogues – Fairytale of New York
Jona Lewis – Stop The Cavalry

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