Me and my girl and boy, raising awareness and acceptance of autism

Friday 18th May

Please take a look at the poem I posted earlier if you haven’t already seen it, it’s beautiful.

If ever a day has been a see-saw day, it has been today! Imagine it, you’re quite happily see-sawing away and then that big old Autism comes and sits behind you and sends you crashing to the ground, hard.

Today started off really well *droll laugh*, we only had T to take to school as D had an eye test. She’d been to the opticians before, she’d had an eye test there before, she remembered it…it all should have gone smoothly, umm no.

She took some persuading to get through the door – if she hadn’t been in her buggy, we wouldn’t have got in there at all! Were a few minutes early so we looked at the children’s glasses – Garfield, Hello Kitty, Little Misses – all sorts. All seemed to be ok until they were ready for us. D tried to bolt out of the opticians. Five minutes or so of persuasion and I got her into the room. Then she wouldn’t sit in the chair. Then she wouldn’t have the glasses on. The optician by now was getting frustrated and was saying that as she wasn’t co-operating that we should book again, for a double appointment. Eventually she agreed to sit up and the test started. However because she wasn’t sitting properly/didn’t want to read some of the letters/maybe was taking a bit too long, the optician decided that we had to be referred to the eye clinic via our GP – not again, I’m thinking. Although I appreciate it must have been frustrating for him, they knew that D has autism – I specifically requested a non busy time and reiterated the autism to them -and a few allowances could have been made – a different approach maybe/making the test more fun, I don’t know. He did say that there definitely seemed to be a weakness in one of her eyes but it will be a question of the GP deciding if she can refer without seeing D I presume! Phone conversation should be happening Monday.

I left the opticians feeling really quite stressed and D was glad to be out of there too. I didn’t take her back to
school, it was easier on both of us to keep her off!

She’s very excited about her birthday, we chose lots of goodies for her Piñata at the shops and quite telling, when she was talking about who she wanted to have over at half term for a little (late) party, she didn’t name anyone in her class. There is a parallel class and she picked out three people from that, saying that “if X gets too excited, you need to get him to put his hands on his head and count to ten, because that’s what school does” – bless her!

Perversely she’s been in a really good mood this afternoon – no meltdowns, no upsets!

It really has been a see-saw of a day!

Tonight’s picture is a little paperweight that I have, it’s very appropriate for a SN parent!

20120518-204937.jpg

Comments/RTs as ever welcomed, thanks for reading Jx 😘

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Comments on: "Friday 18th May" (4)

  1. senorthey68 said:

    Hard going when kids are anxious we had problem with dentist despite letting her know G is afraid and had LD she said he couldn’t be referred to orthodontist until he brushed his teeth better have bought electric brush and tried to help him but we’re still struggling. Hope it won’t be long till D gets referred have you asked if there is a specialist clinic she can go to sometimes they are more understanding

    • Hi Sian,
      Hopefully it won’t be too long before we get a referral to the eye clinic at the hospital, they are a bit more aware and understanding there.
      Hope you get there with G and the toothbrush!
      Thanks for reading & commenting x

  2. After my day to day, I really feel for you. When I took Tyoma for his last annual visit, it was a screaming/running jamboree. Tyoma is very bright and talkative. Many don’t understand that my mathematical genius can become a shreiking maniac at the drop of a hat–I get the look.

    “Although I appreciate it must have been frustrating for him, they knew that D has autism – I specifically requested a non busy time and reiterated the autism to them -and a few allowances could have been made – a different approach maybe/making the test more fun, I don’t know.”

    You know, I feel irritated with your doctor. With all my son’s shenanigans, our pediatrician is an angel. So many people do take the time to educate themselves about ASD, I expect when I tell a medical proffesional that he’s autistic that they will get it. I am sorry for your lousy experience. They should have been on top of things.

    I don’t have any advice. I think you are doing an awesome job and that proffesionals need to upgrade to the 21st century. Hang in there! 🙂

    Lori

    • Thank you so much for reading and your comments. At the time, I just felt awkward but now I realise that a little bit of compassion and understanding towards D would have made all the difference yesterday. It wasn’t her fault she was anxious and unco-operative, it was the anxieties coming through.

      You’re so right…the situation can change so quickly.

      More education/more awareness needed.

      Thanks Lori, you’re great too!

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