I am feeling completely failed by the “system” today. That system being the NHS.
As some of you may know, I blogged in January about seeing a GP about D’s increased anxieties and whether we needed to go down the anti-anxiety meds route. (my post “why won’t the professionals help us?”) The GP we saw didn’t seem to understand autism or how D could be sitting there interacting with her and I’m telling the GP about her anxiety attacks and D’s threats to self-harm during these. There just wasn’t a basic understanding that yes, my child’s mood can change very quickly and very violently.
Anyway…the GP agreed to refer D back to the paediatric doctor who had diagnosed her, to then refer D onto cahms. I phoned paediatric department the next day to enquire about length of wait for an appointment – 18 weeks.
I had tried to chase up the appointment but kept getting voicemail until today….
Paediatric department’s secretary informed me that they had written back to GP on 8th February, saying that they did not have the resources there to see D and could GP refer her to cahms.
Great, you may think, except the GP never received the letter. I checked with them today. So…had to get GP’s fax number, phone it through to paediatric department. THREE months wasted and we are no further down the line….
I then decided to phone CAMHS to say what was happening and enquire about waiting times and they said I need to
contact Assist and go on an Early Bird course first!!!!
I have had a damn good cry about all this and now I’m angry. Is this how it’s always going to be? Departments not liaising. Being pushed from pillar to post and receiving no support or guidance in the meantime?
Comments/RTs would be very welcome! Jx