Me and my girl and boy, raising awareness and acceptance of autism

Archive for June 22, 2012

Cerebra Newsletter for June

I got sent this via email and thought it might be of interest:

Cerebra are also on Twitter @CerebraUK
(please copy and paste any of the links into your browser to view the articles as the links won’t work here)

Disabled Children Parents Guides:
‘Disabled Children Parents’ Guide: Social Care, Housing and Health’: This guide has been prepared for parents of disabled children who want to know how to get help for their child’s social care, housing and health needs. http://www.cerebra.org.uk/English/getinformation/disabilityrightslegalissues/Pages/DisabledChildrenParents’GuideSocialCare,Housingand.aspx
This is the second of a series of guides to be published by Cerebra that aim to give parents of disabled children information on how to get the help and support they need. The first in the series ‘The Disabled Children Parents Guide: Education’ is also available on our website. Keep an eye out for our Guides on ‘Employment’ and ‘Money Matters’ which are due to be published later this year.

June E-brief:
‘Supporting disabled children and young people who are victims of or witnesses to crime’. This guidance aims to provide information about:
· the impact of crime on young victims and witnesses who are disabled
· the support available
· their rights as victims and witnesses.
Please go to our website to see the full report and download a copy. http://www.cerebra.org.uk/English/getinformation/disabilityrightslegalissues/Pages/Supportingdisabledchildrenandyoungpeoplewhoarevictimsoforwitnessestocrime.aspx

Regional Officers / Sleep Counsellors:
Our Regional Officer for Liverpool, Emma Hayes, is unwell and will be off work for a few weeks. If any of her clients need our help in the meantime please give us a call on our freephone number 0800 328 1159.
Our Sleep Counsellor for the South, Marion Miller, will be leaving us on the 20th July. She has helped many families during her time with us and we give her our very best wishes. If anyone in the south has any sleep queries please contact sleep@cerebra.org.uk or call 0800 328 1159 and ask for Kaileigh Wilson.

Children’s Awards:
We received many wonderful nominations for our Children’s Awards – thank you. We are currently reading through them and will keep you updated on Awards news over the next few months.

Annual Conference – Exhibition Space:
We have exhibition space available at our Research Conference at the Royal Society of Medicine on 2 October.

http://www.cerebra.org.uk/English/WhatsOn/AnnualConference/Pages/ExhibitionSpaceAvailable.aspx

If you know of anyone who might be interested please contact melanied@cerebra.org.uk

For members in Wales:
Cerebra belongs to the Wales Neurological Alliance, which is a group of organisations working hard together to promote the interests of people with neurological conditions at the policy level. If you wish to raise any issues which may need consultation with service providers or a change in Welsh government policy, you are welcome to contact Gill Gleeson at gill@cerebra.org.uk. The WNA produces its own email newsletter and if you would like a copy please also contact Gill. The WNA’s website is http://www.walesneurologicalalliance.org.uk/.

We aim to send the members’ newsletters on a monthly basis but If we don’t have any news for you in a particular month then we won’t send out an e-mail.

Friday 22nd June

Definitely a rollercoaster week. To quote from Ronan Keating’s song “life is a rollercoaster and you’ve just got to ride it”.

I found out last night that someone we knew had died from cancer. 63 years old, before her time. We are also approaching the first anniversary of losing a wonderful, vibrant, take-life-and-live-it person to this disease. Cancer is so vicious and non-discriminatory. News like that makes you appreciate what you have, truly.

On with our day therefore:
The song this morning has been, yep, you guessed it, the “ma nah ma nah” song. Played via YouTube countless times from 730am and all the way to school. Hubbie dropped T off so D walked all the way to her school, with no drop-off at T’s school and therefore much reduced anxieties. She went into school happy and singing. The song had a rest for 6 hours until she came out, late again but extremely happy to see me. The phone was taken out of my bag and the song-playing started again. It could be a lot worse, song-wise!

Defy you not to smile…….http://t.co/iJGD76DU (I hope that link works!) I don’t think it did, sorry. Head for YouTube, type in “Muppets, Mahna Mahna”.

There have been a few squabbles after school between T and D but definitely nothing major, they’re both looking forward to
some downtime this weekend. Both (weather permitting) have their sports days next week so there’s been plenty of practice. D has to wear her “house colour” for it and it has been drummed into me “Mumma, I MUST wear yellow on Wednesday”!

Caterpillar watch – day 22 🐛🌸🐛:
*triple yawn* nada, same as. They’re obviously very busy, hanging around bat-like, transforming away…

20120622-192936.jpg

So, I hope everyone’s had a good day, thanks very much for reading and comments/RTs as ever welcomed Jx 😘

20120622-193151.jpg
(in my case, substitute son for daughter, but it’s a great positive image x)

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