Me and my girl and boy, raising awareness and acceptance of autism

Archive for January 28, 2012

Laugh out loud moments

The blob became a cat:
In Toy Story 3 there was a scene with Woody & Molly dolly and a big brown blob toy thing Rose up behind them. D became fascinated by this blob toy and wanted one. I knitted her a brown shapeless blob and sewed a face on. Went down well.
Blob thing was at the bottom of our bed. Hubbie was taking something into our room, walked past it and assumed it was a cat. Started talking to it and became worried when it didn’t respond.
Do you think they look alike?

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It’s the little things ..

…that cause the meltdowns sometimes. Today’s first one was because Hubbie has made D’s toast and it was not cut correctly. Think he’d folded & cut it or something – anyway it didn’t look right so it wasn’t being eaten. Too many crumbs emitting from it as well apparently. Hey ho.

Dad is starting to “get it”

Hubbie came with me to pick up D on Thursday.
He’s normally at work or co-managing T’s football team so this made a change.
At weekends it tends to be D & I as football is quite full-on & takes up the majority of time. So events out are risk-assessed before we go.
Anyway, D came out wailing because Bunny – her constant companion – wasn’t with her. TA thought may be Bunny was at home. I said no, bunny always comes in and maybe it’s in her pigeon hole?
TA went off to look and came back with bunny, yay, but why did no-one look there in the first place?
Distressed journey back for D, lots of tears and wailing. I had to hold her hand with one hand and support her with the other hand.
Once we were home, Hubbie said that a lot of people had been looking at D (I’m indifferent to the majority of that now, my purpose is D’s welfare) and he said people must have been wondering why she was like acting like that, what’s wrong with her?
I thought, walk in my shoes for a day, mate.
This skin is getting thicker & tougher.

I could have hit him, but I was too shocked

Dropped off T at his school one day during the week, chucking it down with rain.
D in her buggy, as I’m pushing it, I’m getting soaked.
A man was walking behind us, doing that coughing noise that someone does when they want you to move but not exactly saying “excuse me”.
I moved to let him pass, telling D what we were doing.
He passed, no thanks – naturally – and then he looked at D, looked at me, looked back at her and POINTED at her with his umbrella, as if to say “what is this?”. Still without speaking.
I was so shocked I couldn’t speak at first and then said “yes?”.
He turned and carried on walking.
What gives anyone the right to do that? It was as she was in the zoo. Honestly, what gave him the right?

Why won’t the professionals help us

Ever since Christmas, D’s meltdowns have increased. They have not only got more increased, but they’ve changed. She used to be able to just about tolerate people walking behind her, not any more. She stops, terrified, and we have to let them pass, all the while she’s wailing like a wounded animal.
Last week, she was so scared she nearly bolted in the path of a bus. When I asked her why she gets scared, she said it’s because she’s scared the people will try and take her away.
I asked two of the TAs in her class, they said she is more withdrawn since Christmas and more prone to anxiety, less willing to tolerate her peers.
She also tries to hit and kick herself when she feels she’s done something wrong.
Bearing in mind she’s so well developed for her age & the fact we’ve been told puberty will be early, I think wires are crossing in her brain and affecting her.
I think it’s time we consider anti anxiety medication.
I phoned the paediatric department where they diagnosed her & they said go to GP.
We got an appointment & because D was relaxed – we’d been reading from the screen in the waiting room away from the other people – the doctor didn’t really “get” what I was saying. I explained about her meltdowns and the fact that D says she wants to hurt herself when she feels she’s done something wrong.
This was discounted because, as the doctor put it, D was “interacting nicely with her”. When I explained that yes, she might be “interacting” at the moment but autism can change that in a flash, there was no empathy or understanding.
We are being referred back to paediatric dept, the waiting list is 18 weeks.
What do I do between now and then?

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